Different Not Less

-is a journey that my family and I have made and are continuing . The Three Musketeers -my two daughters and I their mother. We are a homeschooling family of three with with children that learn differently from the rest. We have had some battles (okay more than some) with Autism. Combine Autism and homeschooling - add cooking the majority of our food from scratch. Are you cringing ? Relating? Then there was the time I threw away the microwave. Still haven't bought another - and my kids are healthier. Want to read more ? Go on- I sometimes write poetry- it is emotional for me when writing so I don't always pay attention to form. From a mother's heart to yours.
We are different not less.


Tuesday, December 14, 2010

God is not dead;Nor does he sleep

God Is Not Dead Nor Doth He Sleep



-written last year

Athena and I have read for over two hours tonight. So many books. My daughter in my arms, a book in my hands and the words flowed like a river .Later we were praying. As we were praying tonight my 6 year old Athena said:



" God stay in my heart till I am old and I will do everything for you".



How silent I am in her presence. The child who barely lived through that awful night so many years ago in February 2004. The seizures , diapers full of blood, and bleeding intestines did not stop my child. Not even did the diagnosis of autism stop my daughter. Even in silence she loved God so much. No one can tell me different. They were not there.

They were not there as I remember one night we were in the intensive part of the emergency room. She was almost 18 months old. She was enduring a series of unstoppable seizures. She was in a moment of rest. I start to turn the channels on the television for her. It is late at night. I pass a channel that has a pastor on it. She raises her arm and points her finger She starts making a noise. Anytime I would try to change the channel she let me know that she did not want anything but that channel. She was a toddler used to going to church. Even then I think she knew the power of prayer. How she loved God then as well as now.

This is the child that they told me to not expect much of her. That she would never talk, never ride a bike or jump on two feet like any other child. In February of 2009, 5 years almost to the days she had a severe vaccine reaction; she was taken off the autism spectrum completely. The doctor put her on the normal to gifted area of the child development chart. I do not remember the name of the chart in truth.

How these memories and emotions flow through me as I heard my baby girl of 6 pray "God stay in my heart till I am old and I will do everything for you " . How precious and innocent she is. She can pray with such conviction she silences me time and time again. I wonder what God had said to her in those 5 years . I wonder.

My favorite Christmas Carol is from Longfellow's Christmas Bells. It was written in the last year of the American Civil War. A time of bloodshed and severe emotional pain for the United States of America. America was still months away from Lee's surrender to Grant at Appomattox Court House on April 9th 1865. His poem/Carol reflected the prior years of the war's despair, while ending with a confident hope of triumphant peace. All of my life it has been my favorite Carol with deep meaning to me. My favorite line from it is this:
"Then pealed the bells more loud and deep;
'God is not dead, nor doth He sleep;


Here is the complete 7 stanzas of the Carole.


"Christmas Bells"
(The original poem, complete with all seven stanzas)

"I heard the bells on Christmas Day
Their old familiar carols play,
And wild and sweet
The words repeat
Of peace on earth, good-will to men!


And thought how, as the day had come,
The belfries of all Christendom
Had rolled along
The unbroken song
Of peace on earth, good-will to men!


Till, ringing, singing on its way,
The world revolved from night to day,
A voice, a chime
A chant sublime
Of peace on earth, good-will to men!


Then from each black accursed mouth
The cannon thundered in the South,
And with the sound
The carols drowned
Of peace on earth, good-will to men!


It was as if an earthquake rent
The hearth-stones of a continent,
And made forlorn
The households born
Of peace on earth, good-will to men!


And in despair I bowed my head;
"There is no peace on earth," I said;
"For hate is strong,
And mocks the song
Of peace on earth, good-will to men!"


Then pealed the bells more loud and deep:
"God is not dead; nor doth he sleep!
The Wrong shall fail,
The Right prevail,
With peace on earth, good-will to men!"




No he does not sleep. There is hope! A diagnosis is not the end but the journey. You are not alone. He is always there willing and waiting on us to call upon his name. For us to ask him to "stay in my heart till I am old and I will do everything for you". Have you done this tonight or any other night? There is no time like now. Let us encourage one another with love and forgiveness.




For God so loved the world, that He gave His only begotten Son, that whoever believes in Him shall not perish, but have eternal life. John 3:16

Saturday, November 20, 2010

Once Upon A Time - Poem -Angela Utley - Recovery from Autism



It seems that when Autism came into our lives -it  was going to be forever . A diagnosis of one sort or another - that is life.  It may not be autism but another disorder or disease for you. Do you relate?  So many phrases , old words suddenly have new meanings, classic has become Autistic, gluten has become free . Looking back  I wish I had had more support at that point in my life.  If I had a "do over" .  I would ask for more help and accept it when it was available. People don't realize what a phone call even to just check in -what it means to a caregiver of a person with autism or any other chronic seemingly life long disorder. I 'm just saying.
 

      Looking back once more,  I recall how again I felt so alone - as if I were in a desert. Who benefits from that feeling of aloneness?  - I guarantee - it is not God. It makes one think. 
So that desert- I think of as a visual image - Sent off on to a dry, arid spot in time -where water /nourishment is  no where to be found. Dry bones are to be seen everywhere. So many!   How I see with new eyes now. God can restore those eyes as well!  So dry bones - what does it mean- what do we know?  -That  even God CAN and does breath life into dry bones/bodies/ minds. How I found that  throughout my children's lives- how amazing God is .  And I am so glad to be God's daughter!


This particular Bible verse section shown below was pointed out to me through a blog that left me jawdropped. Thank you Brandon Dutcher~!  This poem I wrote had been inspired by this same passage.
      Ezekiel 37: 1-10ish How uplifting this has been to me and continues to encourage me to this day.  Comments would be helpful on my poem  - so I thank you in advance for writing a comment -I am trying to improve my writing of poetry. I need all the help I can get - I now know how to ask for help and accept it ~Angela

Ezekiel 37:1-10 (New International Version)

Ezekiel 37

The Valley of Dry Bones
 1 The hand of the LORD was on me, and he brought me out by the Spirit of the LORD and set me in the middle of a valley; it was full of bones. 2 He led me back and forth among them, and I saw a great many bones on the floor of the valley, bones that were very dry. 3 He asked me, “Son of man, can these bones live?”    I said, “Sovereign LORD, you alone know.”
 4 Then he said to me, “Prophesy to these bones and say to them, ‘Dry bones, hear the word of the LORD! 5 This is what the Sovereign LORD says to these bones: I will make breath[a] enter you, and you will come to life. 6 I will attach tendons to you and make flesh come upon you and cover you with skin; I will put breath in you, and you will come to life. Then you will know that I am the LORD.’”
 7 So I prophesied as I was commanded. And as I was prophesying, there was a noise, a rattling sound, and the bones came together, bone to bone. 8 I looked, and tendons and flesh appeared on them and skin covered them, but there was no breath in them.
 9 Then he said to me, “Prophesy to the breath; prophesy, son of man, and say to it, ‘This is what the Sovereign LORD says: Come, breath, from the four winds and breathe into these slain, that they may live.’” 10 So I prophesied as he commanded me, and breath entered them; they came to life and stood up on their feet—a vast army.


Once Upon A Time -poem by Angela Utley


Once upon a time there was a desert
Embedded with stark silence
Strong willed suffering
Sand swirling

Hot sand
Burning sand
burying bodies quicker than a shovel
taste of dead dirt and sand in the mouth

My young daughter and I venture onward
barefoot and thirsty
scratchy sand between toes
in the quiet day of the desert
Praying


Stumbling upon empty bones
In a dry vacant well
I find rest for us
My precious child
Breath of my breath 

She forments a revolution within herself
unknown to me 
Praying

Air burns our throats
Despair encircles us 

Past images swirl around us
along with the striking sand
My thoughts are bowed down within 

Bitter taste
Falling, I look upward
My child and I 

still and solemn we breath in the desert 
storms and all
Praying

She my daughter
is stone silent 

Walking on tiptoes
Awkward gait moves her

Jerking moves
Tensing muscles
Seizures taking her mind
Breathe once -deep exhale

muscles relax
Moving 
Praying 



Time
Sudden conversion envelopes us without warning


Change

She, my daughter
runs without falling 

Awkward gait no more - 
Poor body awareness has vanished 
Like a mirage made solid
Health returns to those empty bones -

My daughter's empty bones
No more dry vacant wells of the mind for her
God is restoring my child
And my heart
I fall downward to my knees

with indebted gratefulness in my heart
I thankfully pray once more 
How dumbfounded and relieved am I 
Autism Mother Rising
Praying



Selah


SEE!
She flies like a eagle 

Soaring above you 
Should you look!
As she speaks words and phrases
Unspoken-unheard of before now

Departing from the Desert- our Valley of Achor

    My Child had Autism 

    But Autism NEVER had her
    My God had her -always in his steady hand

       

Healed and whole
My child never returns
To that desert I called Autism
Valley of Achor no more 

And daily I stand still -
knowing the presence of God -
Rising

Angela Utley June 2009






Note that Valley of Achor means valley of trouble - A real place named so in a desert  . The following video is my youngest daughter, Athena - who once HAD autism. They told me that she would never speak - not to expect much of her - how wrong they were! Just listen to her. - This is at the Tulsa Zoo - she wants to have her own show. And remember - I was told she would never talk.   I hope this blog has encouraged you - Recovery and healing are POSSIBLE by and through GOD!  I would consider it a honor and a privilege to pray for you - Athena prays as well - OUTLOUD.

Walking On Water - Poem by Angela Utley

 My child , my youngest is now seven years old. Both of my daughters   continue to amaze me.

The above picture is Athena and one of her fav snakes at the zoo . Such a wonderful day. Notice the smile. 
Written well before recovery
Athena recovered Feb 09!
It is not by far well written but came from my heart.



Walking On Water by Angela Utley


She arrived in the world early
but right on time
What a place she has found in this life

Today in Church 

she wears a silky swimming cap for comfort
it has to be soft pink for my
sweet Cinderella princess

My daughter flaps her hands
when the congregation sings
"Too Loud" is said uncomfortably
from her pursed lips; a pronouced frown appears 

Wrinkles become prominent on her forehead 
as her eyebrows inch closer together
Hands held over the ears ever so tightly
I hold her close to my chest as if she was a infant
My eyes looking upward

music sung in the background fills the sanctuary
I kiss the top of her head 
biting my lower lip
I pray for relief to swiftly come
 

On another day
My daughter spins endlessly
Her Head tilted up toward the sky 

Arms outstretched like a airplane
and her world spins in harmony
while other children play nearby
She loves the feel of fresh green grass
between her toes 

all the while expression of contentment
shines like the sun on her face
She breaths happiness
or so I believe

Yet another day:

My daughter enjoys "solitary" play
while other children play 

in a world of games and spilling sounds

My daughter stays silent
while other children spout shakesphere 

in the theater of beloved childhood.

My daughter walks on tiptoes
instead of water 

but one day I know she WILL
run on the water 
even while others sink below


Is it so difficult to walk on water?
I believe my daughter knows.


My daughter had a vaccine reaction
while the medical establishment
looked away 
How can they be so unaware?
My eyes are set straight ahead 

with my eye on the sky
with determination and love
flowing through my veins


My child has been a wonderful teacher 

how much I and others have learned
Love  and hope
But I want a different classrom
I want her to teach a different venue
Anyone else wish for a transfer? 

Aiming for a screenplay with spoken words 
while she walks then runs on water.


Angela Utley

Thursday, November 11, 2010

More than my Child's Diagnosis

 This is my first post on this blog. Sometimes I feel that I am in English Comp again with no idea how the teacher grades or evaluates. So I will go to my old standbys - my poetry.

Big sigh.  I have been dealing with autism for 6 years. My older daughter is now getting evaluated . She is 13. Ariel is her name. Athena is all of 7. All girl and has a amazingly literal mind. The sound you are now hearing is me tearing out my hair.

So my poetry. .  This was written about two years ago but for another mother. As I wrote it (in under 3 mins) I saw myself in many - many of the lines. Where do you find yourself?



More than my Child’s Diagnosis




My child has Autism

Sometimes I think Autism has me

Broken dishes

Extra large diapers by the case

3:00 appointments that never end

Marks on my walls-tears in my couch

Autism has left its mark on my house

I sit for a moment in my old comfy chair

Glancing down to my unmanicured hands

Memories stray to thoughts of peoples' carefree lives

Seemingly not for me

Lifting my head up

Glancing out the window

Moving the curtain, the sun touches my hand

My hands that are full of possibilities

My arms that are full of love

My mind that continually thinks outside of the box

The box gives splinters

I hear a loud noise from the heart of the house

I am involved in a world that is Unaware

So here I am

Autism Mother Rising

Standing now

Tired but not giving up

Loving and being loved

I am genius personified

As I love with all my heart

I am more than my child’s diagnosis


I am Me.






Angela Utley



So there it is - my basis for this blog -to find me whole and intact again. All the while loving my kids.